Dedicated to Evan Scott Ortiz
December 24, 2001 - July 21, 2003
We Do Not Need A Special Day
We do not need a special day
To bring you to our minds
The days we do not think of you
Are very hard to find
Each morning when we awake
We know that you are gone
And no one knows the heartache
As we try to carry on
Our hearts still ache with sadness
And secret tears still flow
What it meant to lose you
No one will ever know
Our thoughts are always with you
Your place no one can fill
In life we loved you dearly
In death we love you still
There will always be a heartache
And often a silent tear
But always a precious memory
Of the days when you were here
If tears could build a staircase
And heartaches make a lane
We'd walk the path to Heaven
And bring you home again
We hold you close, within our hearts
And there you will remain
To walk with us throughout our lives
Until we meet again
Our family chain is broken now
And nothing seems the same
But as God calls us one by one
The chain will link again.
~ Written by Connie Dyer
This special gift for Angel Evan is from my friend Marie.
You can visit her website for her son Rob here ~ Rob Northrop's Site.
These are two beautiful and loving gifts for Angel Evan from my dear friend, Carol, mom to Angel Michael.
Dedicated to Evan Scott Ortiz
From: Adan Viveros
Evans' Godfather, who wrote and read this at Evan's funeral
For scientists, stars are plants for scientific studies. For all of us, they
will always be our family who previously ascended to the firmament. They
stategically position themselves, and from above take care of us all. Evan
will have a place here with us to rest. Such a place we will attend to honor
his memory, and his spirit will always live in our hearts. We will never
stop playing with him, along with Elmo his favorite toy who made his life
enjoyable. Also we all keep watching his exercise routine before his shower
time, and the laughter this would provoke in him. Or the facial gesture he
makes when his Mom, Rosalinda would give him cookies. His soul has been
transformed already into a beautiful star, and has taken a place in the
constellation. The sky tonight will appear most gallant with one more star.
The stars' color will be white, green and golden. The white will come from
his skin, white like snow. The green from his unmistakable eyes like
emeralds. The golden color from his fine heart like gold. The twinkle of
light will come from his beautiful loud laughter. Evan will be a motivation
for poets, as they glance at the sky. For us, it will bring deep peace and
the necessary consolation to continue with our lives. Our families are the
joy of our existence, and it is great to know that we never die...We only
climb higher and shine forever.
After two years of trying, my husband and I were blessed with a
beautiful baby boy we called Evan Scott Ortiz on December 24, 2001. We had
hoped for a boy because, there were no boys on my side of the family. The
whole family had anticipated what it would be like to have a rambunctious
little guy running around. Up until four months of age Evan was a perfectly
normal healthy baby. After he received his four month immunizations Evan
became ill. He had a fever and couldn't keep anything down, he also seemed
very lethargic. We took little Evan to the Hospital and after nine days and
many tests, our precious baby boy was diagnosed with Leukemia. At this point
they weren't sure what type, and he was transferred to a Hospital in Los
Angeles that could better treat him. After another couple days, we were told
that Evan had Acute Myloid Leukemia. From the start, Evans' prognosis was
not good. He was M4 and M5 he also was trisomy 8. His doctor seemed
confident that Evan could be treated with chemotherapy. But we were also
told that a bone marrow transplant may be in his future.
Evan took his treatment in stride and we quickly realized what a
little fighter we had. Everyday of his treatment Evan blessed us with his
smiles and laughter. After his induction of chemotherapy we were able to go
home for a short time before the second round of chemotherapy. All of his
blood work looked good and his lumbar puncture showed that the chemotherapy
was working. Just when we began to feel hopeful, Evan began to get little
bumps on his head. A biopsy was taken and it showed the cancer had spread to
the skin on the top of his head. Evan now had Leukemia Accutis. Chemotherapy
was stopped and now our boy needed a bone marrow transplant.
Because Evan had two half sisters, we needed to find a cord blood donor, so
we went home to wait. Miraculously, a donor was found within one week and we
were on our way to prepare Evan for his transplant.
It was now four months since initial diagnosis and Evan was now
eight months old. I was amazed how he just adjusted to his life, which to
him was normal. As long as he had Mommy, Daddy, Grandma, or Um-Pa (As Evan
would say) he was a happy camper. He never complained.
Even though Evan was a very sick little baby, to us, he was perfect.
After two weeks of outpatient radiation, Evan was about to be
admitted for his bone marrow transplant when he contracted a virus. He got
sores on his mouth and had cold symptoms. His doctors wanted to wait until
the virus ran its course, but Evan's Leukemic Blasts were skyrocketing. If
Evan was to receive his transplant, we needed to do it now. My husband and I
were faced with a big decision. Before the virus Evans chance of surviving
transplant was around 10%. Now that he had this virus, his chances of
surviving were less then 5%. Because Evan did have a chance, we agreed to go
forward with the transplant.
We were told that Evan would be in the Hospital anywhere from
three months to one year. We were amazed to see Evan recovering quickly and
just fighting through anything that came his way. During his recovery he met
his best friend, Elmo. It brought us great joy to see him watching and
enjoying Sesame Street. The hospital staff and any visitors were surprised
to see Evan dancing (bopping) to Elmo's World, playing with his rubber
duckie in the tub, and even walking in his walker with up to nine IV lines
draped over the hanging T.V. Evan lived life to the fullest, he didn't
waste a minute. Evan was recovering so well that forty-six days after
transplant Evan was released from the hospital. The next five months was the
happiest time of our lives.
Even though only out of the Hospital one day, Evan celebrated
Halloween as Spiderman in our room at the Ronald McDonald House. We were
home for Thanksgiving and Evan celebrated his First Birthday on Christmas
Eve 2002. Life was good. We finally had our baby boy home. Evan continued
with his many medications and doctor visits but he very much got to live
what he knew as normal life. Evan loved to watch his favorite videos and
water the grass with mommy. He loved to kick the ball with Grampa and he
loved it when Daddy flew him around the house like Superman.
In March of 2003 Evan began to get red dots on his head. Everyone
tried to convince me that it was ingrown hair from his hair growing back,
but I knew better. A spinal tap and blood work revealed Evan had relapsed.
Then we got the horrible news that there was nothing else that could be done
to save the life of our child. Evan stayed home except for blood
transfusions and doctor visits. He did well until the end of May, when at
the age of Seventeen months our son became a hospice patient, and we began to
prepare for him to go home. Evan held on till the very end, even drinking
out of his sippy cup till his last days. On July 21, 2003 our son was reborn
into God Kingdom. Evan was nineteen months old when he died, but he will live
eternally in our hearts.
We Love You, Boo!!
Always in our Hearts,
Mommy, Daddy, Monica, And Victoria
The mention of my child's name
may bring tears to my eyes,
But it never fails to bring music to my ears.
If you are really my friend,
let me hear the music of his name!
It soothes my broken heart and sings to my soul!
~ Author Unknown ~
He was a gift from God,
A sweet tiny angel from above.
Through all your pain,
Not once did I hear you complain.
You are so special to me,
I'm still trying to understand why you had to leave so soon.
My precious little angel.
You taught me so much more than any teacher can ever teach.
You taught me how to love unconditionally,
You taught me that it was okay to cry,
And to say, "I love you" just because.
The world can never fully understand
The pain I bear inside.
I miss you, and I only dream of having you here with me.
I'll never forget you,
The years may fly by,
but your memory will always stay here right by me.
When you flew so far away that sad morning,
You took a piece of my heart with you.
That hole your departure left will never be filled again.
Oh, please watch over me precious little angel.
I need you to look out for me.
I love you and always will remember you.
Until we meet again,
I'll be thinking about you and missing you.
Good-bye sweet angel, Evan
~ Author Unknown
If Roses grow in Heaven,
Lord please pick a bunch for me,
Place them in my Son's arms
and tell him they're from me.
Tell him I love him and miss him,
and when he turns to smile,
place a kiss upon his cheek
and hold him for awhile.
Because remembering him is easy,
I do it every day,
but there's an ache within my heart
that will never go away.
~ Author Unknown.
The poem and the awards above are gifts to Evan from my dear friend Pammi.
Benjiman's Site Map
Please accept this award for Evan's web page...
once again I am so sorry for your loss,
and you are in my thoughts and
Dear Rosalinda and ANGEL Evan
The sun won't shine any more
The stars won't shine in the night
The moon won't rise in the sky
Nothing will ever again seem right
To know you and feel you
Was to love and hold you
Just to see you smile
Made my life worth while
I will always remember your smile
With your 10 Tiny Toes and fingers
That baby scent you always had
Is a smell that will forever linger
MY DEEPEST LOVE ROSALINDA
In Loving Memory of Lee Henry Aguilera
My Angel Son Michael
With Love For Evan
Sing and Dance with the Angels
Thank you to my dear friend Joyce for many of the tags for Evan's web page.
And thank you to Lynn for all your help with the music for Evan's web page.
A friend can hear a tear drop.
Please visit Maria's Tribute to Christopher
Very Special Angels
"I am so very honored to present you with my
"Littlest Angel Award"
in honor of baby Evan's wonderful courage and spirit."
"I am honored to give you my
"Most Beautiful Music Award."
I loved this wonderful music that lifted
and made me think of little Angel Evan
singing along with Elmo in Heaven."
In Loving Memory of Laura Ann Kimble
"A Gift For Evan in loving memory of Benjiman."
Benjiman's Site Map
This webpage is created In Loving Memory of Evan Scott Ortizon May 3, 2004
Last updated: December 22, 2016
© 2004 - 2016