In Loving Memory of
Carson David Thomas Hartley
19 February 2010 - 2 June 2015



We are broken over the loss of our little hero Carson. He was our everything. He was such a character and melted hearts.
He defied all odds. He was only 5 years old when he passed.

   

The Cord

We are connected,
My child and I, by
An invisible cord
Not seen by the eye.

It's not like the cord
That connects us 'til birth
This cord can't been seen
By any on Earth.

This cord does its work
Right from the start.
It binds us together
Attached to my heart.

I know that it's there
Though no one can see
The invisible cord
From my child to me.

The strength of this cord
Is hard to describe.
It can't be destroyed
It can't be denied.

It's stronger than any cord
Man could create
It withstands the test
Can hold any weight.

And though you are gone,
Though you're not here with me,
The cord is still there
But no one can see.

It pulls at my heart
I am bruised...I am sore,
But this cord is my lifeline
As never before.

I am thankful that God
Connects us this way
A mother and child
Death can't take it away!
~ Author Unknown~









God saw you getting tired and a cure was not to be
And he put his arms around you and whispered, 'Come To Me'

With tearful eyes we watched you and saw you pass away:
Although we loved you dearly,
we could not make you stay.

A Golden heart stopped beating as you took the offered rest.
It broke our hearts but proved to us
GOD only takes the best




   


Carson was mad about Peppa Pig, Mr.Tumble and also Ben and Holly.










Carson loved his brothers and sister loads, and he even met a few celebs, such as Prince Harry.




Click on the "Well Child" logo below to read the story.


Carson was awarded an inspirational child award in London, as he was tracky vented and had over 40 operations including open heart surgery.
But he still smiled every day through everything!



He was diagnosed as terminal last year with mitochondrial disease and was transfered to our local hospice for end of life care.
He had tetrology of fallots heart disease also. He fought till the end.




The day Carson fell asleep forever, June 2, 2015



Our balloons ready for tomorrow hope you catch them all, Carson xx



   



Claire House loves sharing stories of our families about the amazing experiences they've had at the hospice. Kirsty's son Carson spent many happy hours at Claire House Children's Hospice.
It will soon be a year since Carson passed away. This week, at the end of ‪#‎ChildrensHospiceWeek‬, Kirsty shared this lovely post on our page, so we wanted to share it with you.


"Seems fitting that this is Children's Hospice Week and it's also two weeks to our angel's first heaven anniversary. Carson was a whirlwind of energy. He made you smile and was a total inspiration to every person who met him. He changed my life and even though I'm heartbroken, I'm also so very proud beyond words that he was my little boy.

"We have all our family and friends to thank for the beautiful life he led and he never wanted for anything. In the final weeks of his life, he was taken to Claire House, where all his final dreams came true. They allowed us to spend every minute we could with Carson and accommodated us all at the worst time of our lives. They had his playhouse brought to him so he could sleep under the stars. They organised a bouncy castle for his last day here on Earth and he totally loved every minute. We are so very thankful to the staff who worked around the clock to ensure Carson was comfortable and not in any pain in his final hours. We thank them for the dignity and grace they gave him and us in his final minutes and for the privacy and the respect after he passed. They went into the Butterfly Suite and read to him every night and made sure he looked just as beautiful in death as he did in life. If not for them, the experience would have been totally different and we probably wouldn't have made it through those hard dark days that followed.

"Thank you just does not cover what I want to say to the wonderful place called Claire House. I wish that I never had to use the service at all and wish I was still naive to the fact these sad things happen but what I am thankful for is that it was that place that gave us our final journey with the one and only CAPTAIN CARSON. R.I.P my gorgeous boy, you will never be forgotten. Your memory lives on forever,
till we meet again my prince xx."


Carson, you are missed every single day sweetheart and forever loved. mummy and daddy love you always, baby boy. please look in on us tomorrow, and keep us going with your strength.






Do not stand at my grave and weep
I am not there. I do not sleep.
I am a thousand winds that blow.
I am the diamond glints on snow.
I am the sunlight on ripened grain.
I am the gentle autumn rain.
When you awaken in the morning's hush
I am the swift uplifting rush
Of quiet birds in circled flight.
I am the soft stars that shine at night.
Do not stand at my grave and cry;
I am not there. I did not die.
By Mary Elizabeth Frye










These three wonderful gifts for Angel Carson are from my friend Marie.
You can visit her website for her son Rob here ~
Rob Northrop's Site.





LIGHT A CANDLE

And I will light a candle for you
to shadow all the darkness and bless the times we knew
Like a beacon in the night the flame will burn bright
and guide us on our way
Oh today I light a candle for you.

Seasons come and go and I'm weary from the change
Keep on moving on -- you know it's not the same
And when I'm walking all alone
Do you hear me call your name?
Do you hear me sing the songs we used to sing?

And I will light a candle for you...

You filled my life with wonder -- touched me with surprise
Always saw that something special deep within your eyes
And through the good times and the bad
We carried on with pride
I hold on to the love and life we knew

And I will light a candle for you...
Oh today I light a candle for you.






   


We Do Not Need A Special Day

We do not need a special day
To bring you to our minds
The days we do not think of you
Are very hard to find

Each morning when we awake
We know that you are gone
And no one knows the heartache
As we try to carry on

Our hearts still ache with sadness
And secret tears still flow
What it meant to lose you
No one will ever know

Our thoughts are always with you
Your place no one can fill
In life we loved you dearly
In death we love you still

There will always be a heartache
And often a silent tear
But always a precious memory
Of the days when you were here

If tears could build a staircase
And heartaches make a lane
We'd walk the path to Heaven
And bring you home again

We hold you close, within our hearts
And there you will remain
To walk with us throughout our lives
Until we meet again

Our family chain is broken now
An nothing seems the same
But as God calls us one by one
The chain will link again.
Written by Connie Dyer









Your own precious little Angel
watches over you all from above.
As son and brother, he'll be by your side
to fill your hearts with light and love.





To read more about "Captain Carson," please click on the Our Story button below ~



Carson's song is "The World's Greatest" by R. Kelly.


The World's Greatest
Performed by R. Kelly

I am a mountain,
I am a tall tree, oh
I am a swift wind
Sweeping the country

I am a river,
Down in the valley, oh
I am a vision
And I can see clearly

If anybody asks you who I am, just stand up tall,
look 'em in the face and say

I'm that star up in the sky
I'm that mountain peak up high
Hey I made it, hmm
I'm the worlds greatest

I'm that little bit of hope
When my back's against the ropes
I can feel it, hmm
I'm the worlds greatest

I am a giant
I am an Eagle oh
I am a lion
Down in the jungle
I am a marching band
I am the people oh
I am a helping hand
I am a hero

If anybody asks you who I am, just stand up tall
look 'em in the face and say

I'm that star up in the sky
I'm that mountain peak up high
Hey I made it, hmm
I'm the worlds greatest

I'm that little bit of hope
When my back's against the ropes
I can feel it, hmm
I'm the worlds greatest

In the ring of life,
I'll reign in love (I will reign)
And the world will notice a king (oh, yeah)
When all is darkness,
I'll shine a light (shine a light)
And the mirrors of sucesss reflect in me (Me)

I'm that star up in the sky
I'm that mountain peak up high
Hey I made it
I'm the worlds greatest

I'm that little bit of hope
When my back's against the ropes
I can feel it
I'm the worlds greatest

I'm that star up in the sky
I'm that mountain peak up high
Hey I made it
I'm the worlds greatest

I'm that little bit of hope
When my back's against the ropes
I can feel it
I'm the worlds greatest

I'm that star up in the sky
I'm that mountain peak up high
Hey I made it
I'm the worlds greatest



Thank you to my dear friend, Linda, Tina's mom, for sending me this song -
The World's Greatest by R. Kelly - for Angel Carson's special web page!



Tina Marie's Memorial Page




A friend can hear a tear drop.






Please visit Maria's Tribute to Christopher
Angel Christopher
Two Very Special Angels


This webpage is created
In Loving Memory of Carson David Thomas Hartley
on May 6, 2016
Last updated: February 16, 2017
2016 - 2017